Monthly Archives

June 2015

newbie mom

I want you to make the days move easy – most days that is

June 23, 2015

Some Father’s Day wishes for my husband in classic working mom style, which is to say belated

To my ridiculous human man of a husband whom I most of the time find endearing and adore and some of the time want to murder a little bit in your sleep.

You’re killing it at this parenting thing. Thank you for showing your love and support for our family every day. For all that you do, and don’t do, we’re grateful. In your words – not every day can be a fairy tale – but we sure come damn close sometimes. Here’s to our tiny human (soon to be humans – YIKES!) that have made us parents in this adventure together.

Thank you for your support and your partnership. I’m still glad I listened to you.

Always,

JLVR

working mom

why I’m a working mom

June 15, 2015

I’m a working mom because my husband and I are in this parenting game 100%.

He may have never packed a diaper or overnight bag but he does 99.9% of daycare drop-off and pick-up. (He always gives Daycare the heads-up if I’m ever to pick-up V so they don’t assume I’m trying to kidnap him I’m there so infrequently).

He gets V set-up for dinner every night and cooks for all of us. He also takes V to swim every weekend, it’s something they do together.

I work because we work together.

We do V’s bedtime routine together every night trading off who will read him a book and rock him to sleep.

For a few months when it was all about ‘Dada’ he put V to bed every night and  comforted him whenever he needed it, even in the middle of the night.

When V had to go to the hospital, we navigated it together and were there for every moment as a team. He has subsequently taken him to every doctors appointment and almost every blood draw.

I work because we work hard to figure out our balance.

Some days work is challenging, luckily our challenges tend to trade off allowing the other to pick-up the slack. Whether its me or it’s him that needs to work late, it’s no problem – pick-up, dinner and bedtime still happen.

I work because my husband supports my role as a mom AND my career.

Outside of my parents there is no one person more proud or excited about my career achievements than my husband. There’s also no one more enthusiastic about my role as V’s mom. He knew I could do this motherhood thing before I did. Literally.

 

For all the times I want to murder him a little bit in his sleep, I’m reminded of his hard work and sacrifice for our family. For now, we live on in our version of harmony.

newbie mom

ITP, the (seemingly) never ending story

June 2, 2015

It all began on February 15th when a strange rash appeared on V’s face and was kicked-up a notch with V’s admittance to Children’s Hospital for treatment for ITP on February 23rd.

NOTE: Petechiae has a very specific look – see a few pictures of V’s cheeks above for reference. It looks like tiny pin pricks and is not raised. It’s one of those things they say ‘you’ll know it when you see it’ and it’s true. It’s very distinct.

Since being released from Children’s Hospital on 2/24 we began a regimen of weekly blood draws at our local Cleveland Clinic lab. V was a champ. He was a ham in the waiting room, flirting with the ladies. He did really well even though most of the time it was not easy to draw his blood and he was poked and prodded a bit. (Also have you ever met a kid that hated band-aids? It’s this guy. NOT A FAN. All I hear/read about is kids asking for cool looking band-aids even though they don’t have a boo-boo or they have a microscopic scrape. This guy – not so much.)

Each week, in the beginning, we saw a decline in V’s platelets. The declines prompted the request for a quicker turnaround visit in March only leaving half a week rather than a full between lab visits. Then we had an inconclusive test. It was slow torture. The decline was constantly in the back of our minds each week as we waiting until the next draw. The waiting game and the unknown was the worst of it for sure. Here’s how it played out in his platelet count (normal levels are between 150-450,000)…

  • 2/17 Count at 25,000
  • 2/23 Count at 7,000
  • 2/24 Count at 31,000
    • V was released form Children’s Hospital
  • 2/26 Count at 160,000
  • 3/13 Count at 116,000
  • 3/26 Count at 46,000
    • Glass half empty – Another test ordered for Monday
  • 3/30 Count at 60,000
    • Glass half full – Though it was still lower than we wanted, his count had rebounded
  • 4/6 Inconclusive test
    • Glass half full – Even though the test was inconclusive, the doctor felt we could wait until our next weekly draw rather than redoing the test
  • 4/14 Count at 196,000
    • We could skip a week and get checked after our mini vacation to Florida
  • 5/1 Count at 101,000
    • No need to get blood drawn again, schedule appointment with hematologist to HOPEFULLY have one final check and be cleared

Today was, I’m happy to report, our final visit! His count came back at 287,000. V has been cleared by the hematologist. We no longer have to visit the lab for blood draws and can consider his ITP resolved however we should keep an eye out for atypical bruising and petechiae – both signs of ITP. For most kids it’s a one-and-done thing with treatment. We’re hoping this is the case for us. For now we feel fortunate that this can categorized as a blip on the radar of an otherwise perfectly healthy toddler.

– JLVR

More about our visit to Children’s and some of our learnings.